CCSVI Locator - Locate CCSVI Social Network Sites --CCSVI Locator

Locate CCSVI Social Network Sites --CCSVI Locator

The venous hypothesis Chronic cerebro-spinal venous insufficiency (CCSVI) is advocated by researcher Paolo Zamboni for Multiple Sclerosis

Events

ISNVD Patient Day - February 18, 2012

February 18, 2012 all day – Orlando Hilton/onsite or live webinar

Latest Activity

Diana Gordon and Leslie McBain are now friends 1 minute ago

chris johns commented on Laura Pino's blog post 'stem cell update 31 Jan'

If I get 4 hours of sleep in a row, I consider myself lucky.

23 minutes ago

Diana Gordon commented on Tom's blog post 'Need a recommendation for a CCSVI Doctor'

You can call them; Dr. Siskin has partnered up with Saskatchewan, to do the procedures for the trials, but I don't know when they are starting them.

25 minutes ago

Leslie McBain commented on Tom's blog post 'Need a recommendation for a CCSVI Doctor'

Is Albany still as busy as it was a first? I would be interested in Dr. Sisken and it's closer for me. Anyone know? I have to call Rhode island today to see about the results of my test results. I had the run around the first…

34 minutes ago

Can you help Oxford University please?

University of Oxford are looking for UK based caregivers of people with multiple sclerosis to take part in research about healthcare informationTo find out more and to take part in this prestigious research please click the link belowhttp://www.patient-experience.com/index.php/the-e-health-impact-questionnaire/See More

Blog post by Belle Shale 1 hour ago

0 Comments

Marianka Holeshovska commented on Tom's blog post 'Need a recommendation for a CCSVI Doctor'

RI did a good job for us. I know they had problems on the receiving end for our test, but we were right there at RIvi when the slips were faxed. We got follow up every 3 months since November 2010. My brother is better, and they have given us…

10 hours ago

alicia espino commented on Laura Pino's blog post 'stem cell update 31 Jan'

thanks laura alicia:)

11 hours ago

stem cell update 31 Jan

Stem cell update 7 weeks 31 Jan Last week I had trouble with sleep, waking up too early. I did have one good day, but then things got funky. I just kept waking up after 6 or 6 ½ hours, and it just isn’t enough. And then because of that, having a tough day. Meaning: lower energy, less muscle strength, even more volatile emotion, etc. I still exercised and I still lived, just not as happy. I’ve taken every natural sleep remedy under the sun. 5-HTP (gave me a headache, ditto GABA)…See More

Blog post by Laura Pino 12 hours ago

2 Comments

Nasha Smith, myrtoulla gregoriou and A M joined CCSVI Locator 14 hours ago

Tom and Carnegie, Deirdre Diana are now friends 16 hours ago

Shirley Birtles commented on Tony Miles's blog post 'Statins may help with MS'

I have been taking a Statin for years for MS. I havn't seen drastic improvements but I have generally improved over the last 10 years

23 hours ago

DWAYNE WANDA commented on Tony Miles's blog post 'Sativex May Hit Shelves in U.S. By 2013'

another benefit - before you do the herb take your body temp with thermometer , after using vaporizer or smoking it , take your body temperature again , you will find it dropped. the more you smoke the more it drops - to a point. summer in the heat…

23 hours ago

Ruth Manson replied to Karen Copeland's discussion 'MS Wars - a documentary coming to a CBC channel near you.'

I'll watch this Karen, but I suspect it will be a lot of the same old c--p. Our biggest enemy in this "war" .is the Colleges of Physicians & Surgeons throughout Canada, and it appears they (at least Ontario) have been…

23 hours ago

CCSVI clinical trial listing

http://www.clinicaltrials.gov/ct2/results?term=CcsviListing of some clinical trials that are active and not started.See More

Blog post by Tony Miles yesterday

0 Comments

Laura Pino left a comment for Laura Pino

Hi Alicia, check your messages on this site and you will find one from me!

yesterday

Laura Pino left a comment for alicia espino

Hi Alicia, I did email you directly! Check your messages on this site, you will find one from me!

yesterday

alicia espino left a comment for Laura Pino

hi laura i am sure you did what i was asking can you email me directly if that would be ok with you like i said iam hopeless i wrote you a long email then i realize after i sent it and can not retrieve it that it said no replay so for me…

yesterday

Laura Pino left a comment for alicia espino

Hi Alaicia, I sent you a message

yesterday

Keith Broen shared Tom's blog post on MySpace

Need a recommendation for a CCSVI Doctor

yesterday

Carnegie, Deirdre Diana commented on Ken Torbert's blog post 'Research teams making progress collecting critical data on CCSVI: MS society'

I have been treated three times and with the last one of having a biopsey of the vein this information could be a huge help in proving that this procedure is necessary and works. Seriously how does one share there medical records.

yesterday

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Blog Posts

Can you help Oxford University please?

Posted by Belle Shale on February 1, 2012 at 4:37am

stem cell update 31 Jan

Posted by Laura Pino on January 31, 2012 at 3:30pm — 2 Comments

CCSVI clinical trial listing

Posted by Tony Miles on January 31, 2012 at 2:39am

New Wheelchair Kamikazi Newsletter

Posted by Tony Miles on January 28, 2012 at 11:25am — 1 Comment

To Helen M

Posted by John Zacharias on January 27, 2012 at 11:48pm — 1 Comment

Research teams making progress collecting critical data on CCSVI: MS society

Posted by Ken Torbert on January 27, 2012 at 11:00pm — 10 Comments

Sometimes you're the windshield, sometimes you're the fly.

Posted by Linda J. Rousay on January 27, 2012 at 11:44am — 9 Comments

One year Angioversary

Posted by wendy swanson on January 27, 2012 at 4:42am — 8 Comments

Sativex May Hit Shelves in U.S. By 2013

Posted by Tony Miles on January 26, 2012 at 4:12pm — 10 Comments

Need a recommendation for a CCSVI Doctor

Posted by Tom on January 25, 2012 at 7:04pm — 21 Comments

Still No Progress for CCSVI Treatment in Colorado?

Posted by Karen Bludworth on January 24, 2012 at 10:03am — 5 Comments

Pot-based prescription drug looks for FDA OK

Posted by Tony Miles on January 23, 2012 at 3:52am — 13 Comments

Full head

Posted by Leslie McBain on January 21, 2012 at 4:52pm — 13 Comments

Tysabri gets FDA O.K. on test and label change

Posted by Tony Miles on January 21, 2012 at 4:01am — 4 Comments

Novartis drug Gilenya investigated after 11 deaths

Posted by Tony Miles on January 20, 2012 at 10:58pm

This woman is absolutely INSANE!....

Posted by Amber Alstott on January 20, 2012 at 5:40pm — 10 Comments

Statins may help with MS

Posted by Tony Miles on January 20, 2012 at 10:29am — 1 Comment

Warning: The article about the FDA below is REAL life, not a sitcom!

Posted by Karen Copeland on January 20, 2012 at 9:00am — 4 Comments

Canadian premiers reject Flaherty's health plan

Posted by Ken Torbert on January 19, 2012 at 3:44pm — 3 Comments

MS trial to lead to more answers: Society

Posted by Ken Torbert on January 19, 2012 at 3:42pm — 6 Comments

Forum

Buyer Beware 10 Replies

I had the CCSVI procedure in September in Albany, New York. I am 54 years old and have SPMS. I have had MS for 25 years. The procedure did not help me. In fact I am more fatigued, have severe leg…Continue

Started by Ralph Stoye. Last reply by Katharina Stutz on Sunday.

MS Wars - a documentary coming to a CBC channel near you. 1 Reply

http://zootpictures.com/?s=inproduction&fb_source=message&mid=56February 9, 2012 CBC in…Continue

Started by Karen Copeland. Last reply by Ruth Manson 23 hours ago.

anyone who's had the ccsvi surgery 17 Replies

I would like to hear from anyone who has recenty had the ccsvi procedureContinue

Started by Angela Iannucci. Last reply by Richard Markle Jan 25.

Fundraising for CCSVI 2 Replies

I was contacted by Albany in December but had to postpone as I was having both of my kneesscoped due to a fall last year in which I broke (bi-mollecular) my left ankle (the good leg), So now I am…Continue

Started by Barbara Semsch. Last reply by Barbara Semsch Jan 3.

Is the health care system working for you ...and what are your expectations looking ahead? 4 Replies

Sunday January 1, 2012 -- New Years Day on Cross Country Checkup: health system review.Is the health care system working for you ...and what are your expectations looking ahead? As we enter the…Continue

Started by Brian. Last reply by Maria Capelluto Jan 14.

Richie V answer from Bonnie G

Richie I would love to accept your most generous offer. I cannot do anything until I get incorporated here in New York. I cannot accept money donations or anything till I have the incorporation…Continue

Started by Bonnie Green Dec 10, 2011.

Kirsty answers our questions 1 Reply

#FAQMP : Ep 7 Kirsty Duncan Have you ever watched a politician on TV and flipped the channel because no one asked what you're dying to know? No More. You Ask. We Listen. They Answer. This fall…Continue

Started by Karen Copeland. Last reply by Karen Copeland Dec 5, 2011.