CCSVI Locator - Locate CCSVI Social Network Sites --CCSVI Locator

Locate CCSVI Social Network Sites --CCSVI Locator

The venous hypothesis Chronic cerebro-spinal venous insufficiency (CCSVI) is advocated by researcher Paolo Zamboni for Multiple Sclerosis

Events

CCSVI Alberta (Edmonton) Information Session

May 26, 2012 from 1pm to 4:30pm – MacEwan University, City Centre Campus
CCSVI Alberta Information Session

May 26, 2012 from 1pm to 4:30pm – MacEwan University, City Centre Campus

Latest Activity

Karen Copeland commented on Rodney Davis's blog post Vital Statistics for MS Globally

"Well now, there IS a place in life for MS neuros. Personally I use them as the brunt of all my best jokes. As a doctor to visit and expect help from? Well I fired mine and never bothered to replace him. I like my GP and she helps me the odd…"

12 minutes ago

L. Stewart commented on Ken Torbert's blog post Hoag doctor’s reports credited with prompting FDA warning

"And just how many died from similar heart operations? There is always a precentage of death and this report is rediculous! I have a stent and balloned and like all surgery, one conciders the options. Over 60,000 people world wide have…"

14 minutes ago

Kathleen McDermott commented on jim p's blog post FAMPYRA 10mg

" I can't remember what year "Ampyra" came to the U.S. but I started April 1st of that year. I do not take DMD's (never have) - It's just a "potassium blocker". It does not mean you should…"

14 minutes ago

Carnegie, Deirdre Diana commented on Excel Hospital's blog post OVER TREATMENT OF ANGIOPLASTY'S /VEN0-PLASTY'S /"LIBERATION TREATMENT" WHAT NEXT?

"I am glad you are speaking out, there seems to be a large population of those people you are talking about. They have been to multiple clinics had multiple liberation treatments with or without stents and are now physically and…"

16 minutes ago

Rodney Davis commented on jim p's blog post FAMPYRA 10mg

"Yes I take it and it helps. Nice med and no side effects. Not near a cure, but makes it easier to move. I have RRMS. I followed this drug since phase 1 of FDA testing. And it work okish. But I do not want to give it up."

23 minutes ago

Carnegie, Deirdre Diana commented on Norma Harrison's blog post DAY 1 " MY HERNANDEZ JOURNEY "

"Your in the best of hands Norma have an excellent night . Its an experience you need to focus on and enjoy as this will get your blood flowing."

26 minutes ago

Sharon commented on Rodney Davis's blog post Vital Statistics for MS Globally

"love the side affect list could cause ms! Why does anyone still bother with Nuros?"

26 minutes ago

Betty Taylor commented on jim p's blog post FAMPYRA 10mg

"I just started it on Monday, no side effects thus far. I only take one pill first thing in the morning, on an empty stomach. Want to make sure I don't have yukky side effects before I take the second pill, as some people have said they…"

35 minutes ago

Norma Harrison posted photos

6 more…

36 minutes ago

Norma Harrison posted a blog post

DAY 1 " MY HERNANDEZ JOURNEY "

Hi All, I'm doing great, it's like a hotel here, service has been impeccable so far. All of my requests have been met. So far we have met so many very nice people. First, was our driver Sergio who picked us up at the hotel in San Diego in the morning. He is a friendly, talkative man who filled us in on some interesting Tijuana facts.…See More

37 minutes ago

1 Comment

Nina Khehra commented on jim p's blog post FAMPYRA 10mg

"Hi Jimmy, I was on FAMPYRA, or 4-Aminopyridine in 1991, it was experimental at that time; but I was so ill, that my doctor in BC tried anything for me to get my mobility back. I was very pleased with this drug, which is a potassium blocker, as…"

40 minutes ago

Jackie Joy commented on Saraloud's blog post Multiple Sclerosis: Bratislava presented the results of research on adult cells

"Can/will someone translate?"

43 minutes ago

Carnegie, Deirdre Diana commented on Ken Torbert's blog post Dr. Arata-- Orange County Register -FDA issues warning about controversial MS treatment

"part of the issue is people are getting this treatment multiple times and at different clinics. I would almost gaurentee the gentleman had treatment(s) before. I would suggest to all involved that there is some risk and the doctor surfing must come…"

47 minutes ago

Norma Harrison posted a photo

MELISSA

NUTRITIONIST

49 minutes ago

0 Comments

Diane Duchesne commented on Tony Miles's blog post Biogen is also seeking approval for BG-12 in Canada and Switzerland. FDA response should be out in late 2012/early 2013.

"You are all very welcomed, when it comes to drugs & info from someone who has tried it, and been there done that....... I don't want anyone else to not be informed and believe a neuro that it is safe and they will be pushing this…"

1 hour ago

Rodney Davis commented on Rodney Davis's blog post Vital Statistics for MS Globally

"My grandmother (wife of a country MD, my grandfather) used to read the little inserts for new medicines and get many if not all of the side effects. But the side effects of BG-12 look insane. How can this medicine make it to market with these side…"

1 hour ago

Francine Keenleyside and Jayne thomas are now friends

2 hours ago

Lori Batchelor commented on Ken Torbert's blog post Hoag doctor’s reports credited with prompting FDA warning

"If venous angioplasty is not an "approved" procedure in the jugular veins then they better stop treating patients with chronic renal conditions who receive this treatment regularly. I have it in writing from the BC Ombudsperson…"

2 hours ago

Sue commented on Rodney Davis's blog post Vital Statistics for MS Globally

"As I said in an earlier post, I also was in this study! Interesting about the side effects IS possible MS!! And my Dr tried to say that the liberation treatment I had obviously didn't work as I had 2 relapses since. Hmmm maybe it was BG12!!!!…"

2 hours ago

Patricia Grace-Farfaglia commented on Ken Torbert's blog post Hoag doctor’s reports credited with prompting FDA warning

"I am a highly religious person. So let me stop taking Copaxone and pray my rosary. But I have been liberated by Dr. Siskin and Dr. Scalafani and I now pray for the their health and success in fighting the good fight. Nobody can look at my case…"

2 hours ago

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Blog Posts

DAY 1 " MY HERNANDEZ JOURNEY "

Posted by Norma Harrison on May 16, 2012 at 5:59pm — 1 Comment

CT Screening: Why I Do It Michael Brant-Zawadzki

Posted by Ken Torbert on May 16, 2012 at 3:17pm

Press Release of the Association in response to the U.S. F.D.A. announcement about the safety of the treatment for CCSVI

Posted by Ken Torbert on May 16, 2012 at 12:24pm

Hoag doctor’s reports credited with prompting FDA warning

Posted by Ken Torbert on May 16, 2012 at 12:00pm — 23 Comments

OVER TREATMENT OF ANGIOPLASTY'S /VEN0-PLASTY'S /"LIBERATION TREATMENT" WHAT NEXT?

Posted by Excel Hospital on May 16, 2012 at 8:15am — 2 Comments

FAMPYRA 10mg

Posted by jim p on May 15, 2012 at 6:56pm — 11 Comments

What is the news on Hubbard Foundation

Posted by Ken Torbert on May 15, 2012 at 5:07pm — 2 Comments

Clinical correlates of chronic cerebrospinal venous insufficiency in multiple sclerosis

Posted by Ken Torbert on May 15, 2012 at 11:13am — 2 Comments

Multiple Sclerosis: Bratislava presented the results of research on adult cells

Posted by Saraloud on May 15, 2012 at 5:54am — 1 Comment

Latest Google news on CCSVI

Posted by Ken Torbert on May 14, 2012 at 5:11pm — 1 Comment

More From Mike Arata On The FDA

Posted by Ken Torbert on May 14, 2012 at 2:30pm — 72 Comments

CCSVI Searchable Database from CCSVI Alliance

Posted by Ken Torbert on May 14, 2012 at 1:32pm

Arlene Pellar Hubbard on Sunday, May 13, 2012 · Hubbard Foundation conference

Posted by Ken Torbert on May 14, 2012 at 1:24pm — 1 Comment

Hubbard Foundation conference by CCSVI Alliance

Posted by Ken Torbert on May 14, 2012 at 1:20pm — 5 Comments

Zamboni method: 'unjustified alarm by FDA'

Posted by Saraloud on May 14, 2012 at 7:54am

Vital Statistics for MS Globally

Posted by Rodney Davis on May 12, 2012 at 8:00pm — 23 Comments

Risky MS treatment worth it: N.L. man

Posted by Ken Torbert on May 12, 2012 at 4:33pm

Biogen is also seeking approval for BG-12 in Canada and Switzerland. FDA response should be out in late 2012/early 2013.

Posted by Tony Miles on May 12, 2012 at 8:00am — 6 Comments

CCSVI News Alert

Posted by Ken Torbert on May 11, 2012 at 10:52pm — 5 Comments

Dr. Arata-- Orange County Register -FDA issues warning about controversial MS treatment

Posted by Ken Torbert on May 11, 2012 at 7:00pm — 9 Comments

Forum

Confusion over stents 1 Reply

My hubby and I are looking at CCSVI for him. Last night on another MS forum he found a link where people were going to Stanford and getting stents rather than balloons. I get it that stents last…Continue

Started by Cindy Scott-Turner. Last reply by Carnegie, Deirdre Diana yesterday.

Massage Therapy and CCSVI

Could massage therapy (finger pressure) along the neck help close internal jugular veins? Thoughts?

Started by Eva B on Sunday.

What do you think about ccsvi if you have had it done? 9 Replies

Have you had ccsvi done and if you have what do you think about it?Continue

Started by Jack Grubbs. Last reply by tiltawhirl 21 hours ago.

Hubbard Foundation Conference on Chronic Venous Disease in Multiple Sclerosis May 12th 1 Reply

Hi all,Come join us for our 2nd annual conference on chronic venous disease in MS. In addition to information on venoplasty we have experts who will speak about diet, supplements, chiropractic…Continue

Started by Arlene Hubbard. Last reply by Ken Torbert on Sunday.

Any studies regarding head/neck trauma and CCSVI? Spine trauma and CCSVI? 10 Replies

I have been wondering about this for some time now. I myself have had two whiplashes, some C5/C6 issues, lumbar-sacrum issues, and a lot of back pain and stiff neck. (I did not get diagnosed for MS…Continue

Started by Eva B. Last reply by Maggie Z. yesterday.

CRABS and CCSVI 9 Replies

Curious to know how many of you post procedure (not in progressive stage) are continuing disease modifying drugs.What does research say?Continue

Started by Eva B. Last reply by Tin dAVIDSON Apr 30.

Still progressing!! 3 Replies

2 yrs after my Liberation (June 4th) I thought I had plateaued. Enjoying 2 yrs of continued improvement I felt so blessed to have the opportunity to live againSpending winters in Texas was soo good…Continue

Started by Jill Whitford. Last reply by pamela blevins Apr 28.

MS and RN's 9 Replies

Good morning! I now must post a question I have been chasing for many years. When I saw that Marie A Rhodes was an RN and has MS I knew I had to write.The number of RN's with MS is staggering. It…Continue

Started by Roanne Hanel. Last reply by Roanne Hanel May 7.