CCSVI Locator

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The venous hypothesis Chronic Cerebrospinal Venous insufficiency (CCSVI) is found in MS patients and now more Neurodegenerative diseases

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Latest Activity

Tony Miles posted blog posts
24 minutes ago
Dan Edward posted a blog post

MS Brainstorming Session

Please post your own healthcare FACTS in the "Comments" field. We may share a core group of Causes and have additional health problems. I promise to assemble the list and play it back to you. Remember - only Facts - no speculation.Let me start us:1. Diagnosed with severe sleep apnea2. A massage therapist found scar tissue on my SCM muscle at the exact spot of blockage shown on my MRV.3. Cortisol is higher than high.4. After 9 months wearing a mouth guard my right TMJ popped.Please add... I am…See More
11 hours ago
Maggie Z. commented on Maggie Z.'s blog post A few questions about progression.
"Thanks for the info guys."
17 hours ago
Per West commented on Tony Miles's blog post Evidence Is Growing MS and HIV: Could MS Be Caused by a Retrovirus?
"I'm not so sure that Europe will be any different to the Americans. Her one can see how the debate was carried out during the patients fight for acceptance of CCSVI, and the doctors cling to their sponsorships from the pharmaceutical industry.…"
17 hours ago
Dan Edward commented on Maggie Z.'s blog post A few questions about progression.
"One more thing I meant to mention is your cortisol level (via a simple blood test). If in Canada, cost for these 3 tests is, in order, $0 + $$$USD + $0."
17 hours ago
Dan Edward commented on Dan Edward's blog post Cortisol
"I will look into this book further. I think cortisol (and adrenal/hormones) is somehow part of the MS puzzle. Also see my post last week (Feb18) for a good book which I think gives some more MS puzzle pieces."
18 hours ago
Dan Edward commented on Maggie Z.'s blog post A few questions about progression.
"Get your pxygen level at night checked (via a sleep study) and your bloodflow (via an MRV with the Haacke protocol)."
18 hours ago
connie Nichols commented on Dan Edward's blog post Cortisol
"will it seems as if MS tends to screw with our endocrine system. I bought a book called "Adrenal Fatigue"----------there are several good ones available"
18 hours ago
Tony Miles commented on Maggie Z.'s blog post A few questions about progression.
"The difference between SPMS and PPMS is that with SPMS you still get flares but continual to get worse at the point after the flare. PPMS is not related to flare ups and does not have inflammation you just continually worse. Some doctors believe…"
18 hours ago
Maggie Z. posted a blog post

A few questions about progression.

 I have no idea what type of MS I have but it is indeed evil. I'm 35 and my EDSS score is a seven. I'll get to my questions in just a minute. I was DX in 2002 with RRMS. I had a negative spinal tap but they did find lesions in my brain and spine. First question is: what is the difference between PPMS and SPMS when it comes to inflammation and new lesions. I have all the same damage that I had in 2002 butt nothing ever shows up different in my MRI's. Year after year I steadily get worst but the…See More
19 hours ago
Dan Edward commented on Dan Edward's blog post Cortisol
"Thx for replying Connie. I too am producing higher than normal high amounts - and don't know why. Dan"
yesterday
Tony Miles posted a blog post

Synthon announces successful outcome of the Phase III GATE study with its generic glatiramer acetate

Synthon announces successful outcome of the Phase III GATE study with its generic glatiramer acetate(27/03/14)NIJMEGEN, the Netherlands--(BUSINESS WIRE)--Synthon today announced that the company’s glatiramer acetate met the main endpoint of a late-stage study in patients with relapsing remitting multiple sclerosis (RRMS). The Phase III Glatiramer Acetate clinical trial To assess Equivalence with Copaxone®* (GATE) is to-date the only Phase III…See More
yesterday
Dan Edward commented on Dan Edward's blog post F-MRI or MRV
"Maybe it was the same as the MRVs done in Canada? They tend to just show the veins and are not Time Of Flight. All 6 of the MRV I posted use the Haacke protocol. MRVs from California and Detroit use this protocol. Look at the 6 MRVs i posted and you…"
yesterday
Tony Miles commented on Tony Miles's blog post Evidence Is Growing MS and HIV: Could MS Be Caused by a Retrovirus?
"I think the Europen countries are going to find the cause and effect. Their research is based on cutting cost not making a profit. Spain research revealed 1600 MS patients tested positive for the HERV virus. Denmark study was more detailed of 350…"
Monday
Tony Miles commented on Dan Edward's blog post F-MRI or MRV
"My GP ordered it, it was done in NJ"
Monday
Linda J. Rousay replied to Stephen Lovatt's discussion CCSVI in Healthy People
"I had my prodedure al at 4 years ago, I had an EDSS of 8.0. After angisty I have been asymptomatic for MS for almost years. It saved. Y I've I had angioplasty 4 years ago and am asymptomatic for MS...not bad…"
Monday
Marc Stecker commented on Tony Miles's blog post Evidence Is Growing MS and HIV: Could MS Be Caused by a Retrovirus?
"This is one of the most promising areas of research and medicine, not only for MS but for a variety of other diseases. HERVs have been implicated in cancers and even some mental illnesses. This hypothesis goes a long way in explaining many of the…"
Monday
Dan Edward commented on Dan Edward's blog post F-MRI or MRV
"Tony - where did you have your MRV done?"
Monday
connie Nichols commented on MS Karen's blog post Cholesterol-Lowering Drug May Prove Beneficial for People with Secondary-Progressive
"by the way, before believing the doctor about allegedly "high" cholesterol, look at your test results yourself. If your good cholesterol  number is high, but your bad cholesterol is low, your total cholesterol level is still going to…"
Sunday
connie Nichols commented on MS Karen's blog post Cholesterol-Lowering Drug May Prove Beneficial for People with Secondary-Progressive
"statins have far more negative side effects and benefits, and actively contribute to severe memory loss/dementia/Alzheimer's almost immediately after starting the drug.  Your brain is made of cholesterol, and it needs cholesterol  for…"
Sunday

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Blog Posts

MS Brainstorming Session

Posted by Dan Edward on April 22, 2014 at 7:17pm

A few questions about progression.

Posted by Maggie Z. on April 22, 2014 at 10:46am — 4 Comments

Tysabri can indirectly help bladder problems

Posted by Nisse Hult on April 20, 2014 at 2:00pm

F-MRI or MRV

Posted by Dan Edward on April 20, 2014 at 6:54am — 4 Comments

Slowing down PPMS

Posted by MS Karen on April 17, 2014 at 5:27pm

So You Didn't go to Medical School? Read This"

Posted by Dan Edward on April 17, 2014 at 7:52am — 1 Comment

MIS416 trial

Posted by MS Karen on April 15, 2014 at 7:06am

EBV Treatment for SPMS

Posted by Stephen Lovatt on April 14, 2014 at 12:14pm — 4 Comments

Report on MS

Posted by MS Karen on April 13, 2014 at 9:39am — 1 Comment

Do you dare to hope?

Posted by MS Karen on April 11, 2014 at 8:18am — 1 Comment

Natalizumab in progressive MS:

Posted by MS Karen on April 11, 2014 at 7:15am — 1 Comment

Slowing down PPMS

Posted by MS Karen on April 11, 2014 at 7:11am

An MS Theory

Posted by Dan Edward on April 11, 2014 at 2:58am — 1 Comment

Forum

Tired All the time, so what's new, we're all tired 2 Replies

OK, I'm tired 24/7. Should I just get out and about, exercise, etc, or just stay in bed and relaxContinue

Started by Diana Hart. Last reply by MS Karen Apr 14.

Bad Fall 1 Reply

I have been away for a while.  I try to keep an eyeon this site to eep up.  I owe this site alot.Bad painful morning. Showered in stand up tub assisted by a home health aid. Got cleaned and…Continue

Tags: leg, commode, EMT, pain, fall

Started by Rodney Davis. Last reply by Sheila Rihm Mar 26.

CCSVI and Lupus

Has anyone with Lupus or Lupus-like conditions looked into CCSVI? I was diagnosed Valentines Day 2006 with a lupus-like conditions; while I have been managing okay with a constant dose of…Continue

Started by JPerson Mar 15.

Scar tissue therapy 2 Replies

I recently was told by a friend about a device that improved his carpal tunnel symptoms .it is a vibrating device that breaks up scar tissue.i contacted the manufacturer yesterday by email and got a…Continue

Started by Debbie Winnie Bond. Last reply by Debbie Winnie Bond Mar 1.

Dr. Burt Stem Cell Transplant in Chicago

While lying in bed one night, on my ipad, I thought someone had requested info from me about Dr. Burt.  Now I can't find it.  (It's either MS or I'm crazy.......haha)  Anyway, I thought I would…Continue

Started by Diane schaeffer Feb 19.

CCSVI in Healthy People 2 Replies

There as been a few trials now conducted where researchers have compared the narrowing of veins in patients diagnosed with MS and what they deem to be healthy individuals. These health individuals…Continue

Started by Stephen Lovatt. Last reply by Linda J. Rousay on Monday.

Ampyra/fampyra 22 Replies

Hi thereDoes anyone on here take the above or has tried the above? If so have you had any luck with it? I'm about to give the free months trial a go and I just wondered what to expect, thanksContinue

Started by J. Farrell. Last reply by Stephen Lovatt Feb 16.

The Myelin Project

It's not new, thought I would post.I just received my Christmas card from them.…Continue

Started by Stephen Lovatt Dec 20, 2013.

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